![]() ![]() People with CF follow a daily treatment regimen to control their disease. ![]() Students with CF may have the following symptoms: Persistent wheeze or cough, recurrent respiratory infections/pneumonia, excessive appetite but poor weight gain due to difficulty in digesting food, and small growth stature. ![]() Each student with CF should be assessed on an individual basis for physical and emotional health. For instance, one student with CF may be well enough to attend school either full or part time while another student is limited by the severity of their disease to attend school regularly. CF is not contagious and affects each person differently. CF does not effect one’s intelligence or ability to learn. The presence of this mucus leads to severe respiratory and gastrointestinal complications. CF is a chronic disease and is characterized by a defective gene, which causes the formation of abnormally thick, tenacious mucus. People with cystic fibrosis (CF) may not appear to be severely ill. Understanding a child’s rights, building communication with teachers, and anticipating and outlining any modifications that might be necessary are all factors to a child’s success in managing class work and feeling comfortable in the classroom.ĬF is a genetic disease affecting approximately 30,000 children and adults in the United States. As with any school issue, confidentiality is important. Some patients and parents are open about their disease while others prefer total privacy. It should also be discussed who should be informed about the child’s condition. There should be discussion with parents, teachers, school nurse, and other appropriate faculty about what accommodations or modifications may be necessary prior to the child starting school. Communication is the single most important tool parents and teachers share. It is important for parents to understand some of these limitations. Teachers are required in today’s world to accommodate children with a wide variety health and academic needs utilizing more resources at a time when classrooms are crowded, aides are scarce, and the school nurse serves many schools. Parents are the advocates for CF children in the classroom. ![]()
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